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Community Stories

PRISMA RESEARCH GROUP

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Elsewhere in the GenomE
Fragile X

Karen’s story is an inspiring example of how a mother’s love, curiosity and resilience can lead to positive outcomes for her family and her community. She hopes that by sharing her experiences and her research, she can help other families living with Fragile X and other rare diseases to find their own strengths and champions. She also hopes that by raising awareness and understanding about Fragile X, she can contribute to the advancement of research and care for this condition.

Elsewhere in the GenomE 
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“Being a mom of a child with disability is the most special thing in the world. I was meant to be his mom, we have a special bond. He’s my whole world and I feel so blessed. S is my best friend and I love him more than I can tell you.”

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Elsewhere in the GenomE 
Liam's Story

"Liam is the happiest kiddo and lights up our life. We are thankful we came across the conference and were really able to get involved"

Territorial Acknowledgement 

PRISMA respectfully acknowledges that Alberta is located on Treaty 4, 6, 7, and 8 Territory traditional lands - a traditional gathering place for diverse Indigenous peoples, including the Cree, Blackfoot, Métis, Dene, Stoney-Nakoda Sioux, Saulteaux, Siksika, the Pikuni, the Kainai, the Tsuut’ina, the Stoney-Nakoda First Nations and many others whose histories, languages and cultures continue to influence our vibrant community.

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